The ' Lunar children ' of Morocco (video)
Xeroderma pigmentosum is a genetic disorder, caused by not or only partially functioning of DNA polymerase Î·. people with Xeroderma pigmentosum DNA-damage from UV light does not fix it.
It leads to basal cell carcinomas and other skin diseases at a young age. Depending on the severity should total sunlight to be avoided. One of the indications that XP suffers is that one Burns very quickly and that the healing of a sunburn can last several weeks. However, this is also depending on the type of XP where one suffers from. In some forms is XP only recognized when the skin changes. These symptoms are caused by a hypersensitivity to ultraviolet radiation.
Because the victims should not be exposed to sunlight they can really only after sunset. This causes the victims also called Moon children. Morocco has almost 2,000 inhabitants suffering from this rare disease.
Fatima Zohra, a Moroccan girl with this disease, tells to Lefr360: "the difficulties I have ever experienced its largest if I go out, the people look weird to me and there are people who are berating me, both young and mature people. The medications are very expensive, so we need every day medicines before our eyes. There is also little awareness about this disease. "
Further she explains: "I have a Facebook page and YouTube channel created to notify people of this rare disease and also so that they find out more about this disease. My message is that people normally with the people who have this disease have to go ".
"Against the people who have this disease, I would like to say that they are good for themselves, not sad and that they have nothing to attract the negative comments they get. They have to pretend to be the comments haven't heard. Against the other people I want to say that they are in a normal way to deal with them, they are very normal people. "
[video = youtube; 5hrsgV2VHv4] https://www.youtube.com/watch? v = 5hrsgV2VHv4 [/video]